Original
The fatigue, the joint stiffness and the chronic pain are daily struggles although in themselves aren't life threatening, they reduce the quality of life and are the ones hard to control. Blood clots and organ disease are severe and knowing when to act on symptoms and events such as stroke and dvt/pe is key alongside therapy. There are so many scary symptoms but surprisingly the ones I fear the most are the headaches, the memory loss and the fatigue rather than the blood clots as they take away the enjoyment of daily life.