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Do your own research
Know your disease and take an active role in your treatment options
Find doctors and specialists that you trust
Be proactive in your treatment
Try alternative treatments like acupuncture, massage, body work, reiki, prayer, and think about joining research studies
Listen to your body : rest when you feel tired, take medicine as prescribed, talk to your doctors, be honest, and give yourself a break.
Remember - this is a marathon, not a sprint.