Quelle est l'espérance de vie avec le Syndrome de Cowden? Est-ce que vous connaissez les derniers progrès du Syndrome de Cowden?

I am the latest development, being the longest user of rapamune in the US for my PTEN disorder. The drug effectively batches the PTEN cell and allows it to function normally. There is a one major study ongoing in the US, as well as one VERY active and well funded foundation in the UK - Also, there's an annual symposium at The James in Columbus Ohio, addressing patient concerns. This year's event is June 10th...