Quels conseils donneriez-vous à une personne qui vient d'être diagnostiquée avec le Syndrome d'Ehlers-Danlos?

Des conseils pour des personnes ayant de l'expertise en Syndrome d'Ehlers-Danlos pour des personnes qui viennent d'être diagnostiquées avec le Syndrome d'Ehlers-Danlos

Original


To LIVE, do the things you enjoy while you can, you may not be able to later! Don't think of EDS as a death sentence, think of it as a reason to explore the world and not procrastinate. DON"T be reckless, DO be kind, to both yourself and others. What would I have done differently?, I wouldn't have been such a perfectionist and I would have been less judgmental towards others. Also, I wouldn't have been as demanding on my body physically, wouldn't have pushed so hard and maybe could have avoided several injuries.

Traduit