Comment vivre avec le Syndrome d'Ehlers-Danlos? Est-ce qu'on peut être heureux/-euse avec le Syndrome d'Ehlers-Danlos? Qu'est-ce qu'il faut faire pour être heureux/-euse avec le Syndrome d'Ehlers-Danlos?

Vivre avec le Syndrome d'Ehlers-Danlos peut être difficile, mais il faut lutter pour essayer d'être heureux/-euse. Nous allons voir quelques choses que d'autres personnes ont fait pour être heureuses avec le Syndrome d'Ehlers-Danlos

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Lots of people are happy while living with EDS, myself included! I've found the best thing to do is to accept EDS as a part of your life that will never go away, as an unchangeable fact. I also look for the good in having EDS: I love my soft, smooth skin, for example. Another thing that has helped me is practicing radical body positivity. My body is all kinds of messed up, but I've learned to love it anyway. Keep in mind that it's ok to have negative thoughts about your EDS. It's ok to struggle sometimes. There are times where I appreciate having EDS. Knowing that I'll always have it can be weirdly comforting for me during times of major change because at least there's one constant in my life.
It's taken a few years of work to get to this point. I used to be very depressed about my EDS and feel a lot of anger and hatred towards it. Be patient.

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