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First piece of advice....DONT PANIC! Don't bog yourself down with medical jargon and bombard yourself with web pages scaring the life out of you. You have been diagnosed which is Great, it's positive! You will now be treated and seen by an expert who will hopefully alleviate any fears you have. Ask simple questions such as "what are my ferretin levels" and what is the next step in my treatment. Join a support group online they can be great for finding things out from more experienced sufferers. And remember this is not a death sentence we can all live a perfectly normal healthy life with this condition.