Quels conseils donneriez-vous à une personne qui vient d'être diagnostiquée avec les Hémochromatoses de type 1?

Des conseils pour des personnes ayant de l'expertise en Hémochromatoses de type 1 pour des personnes qui viennent d'être diagnostiquées avec les Hémochromatoses de type 1

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See the answers given further up.

In addition:

Please do not despair if you have to wait for a couple of months before your treatment starts. It is normal for high level of Ferritin that you do phlebotomy once per week during the first weeks/months. It is also normal with a short peak up on the Ferritin level after you have had some of the first phlebotomies. It is also normal that the Transferrin Saturation only drops below 45-50 % at he the very end of the series of phlebotomies and when the Serum Ferritin drops below 50. It also take some time before your extreme tiredness disappear.

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