Quelle est l'espérance de vie avec la Hydranencéphalie? Est-ce que vous connaissez les derniers progrès de la Hydranencéphalie?

The life expectancy of individuals with Hydranencephaly is statistically noted as a few months to a year. The reality, however, is that children with Hydranencephaly oftentimes live many years with an optimistic care team and strong, educated parent advocates - the oldest recorded via Global Hydranencephaly Foundation was 33 years old at passing. There is no way to predict the accurate life expectancy for a child with this diagnosis. Learn more at www.ghf.life