Existe-t-il un régime alimentaire qui peut améliorer la qualité de vie des personnes atteintes du Syndrome De Joubert?

There is no general diet for Joubert syndrome, however some conditional dietary needs may arise, for example some children are tube fed or require a puréed diet due to oral motor, and aspiration issues. High calorie diets early on can help make up for feeding defecits and maintain healthy weights. Those with Kidney disease may require closely monitored fluid intake and output and a kidney healthy diet... etc