Quels conseils donneriez-vous à une personne qui vient d'être diagnostiquée avec la Polychondrite Atrophiante?

Des conseils pour des personnes ayant de l'expertise en Polychondrite Atrophiante pour des personnes qui viennent d'être diagnostiquées avec la Polychondrite Atrophiante

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Finding the right Rheumatologist is been most important to me. The first one I had agreed I had RP, but he didn't take much interest in it. So after a year, I let him go. I found another one who said it was a privilege for him to take care of me. He prays for me in his office. We are in one accord. I can write to him in my Patient Portal and tell him what is going on between visits. I did that yesterday and he is having me come in this afternoon. I feel like I am special to him because I am the only patient he has with RP at this time. That's the way it should be!

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