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Try to read as much as you can about the disease and join a support group so that you benefit from the experiences others who have had Sarcoidosis for some time can pass on. Always remember you will never be alone if you do this. There is a lot of conflicting information and you may sometimes find yourself educating members of the medical profession as there are few GP's and doctors who understand the disease. If you are able to get a consultation at either the Royal Free Hospital or the Royal Brompton as these are the best hospitals with experienced doctors for patients with Sarcoidosis in the UK