Quels conseils donneriez-vous à une personne qui vient d'être diagnostiquée avec le Syndrome de Stiff-Person?

Des conseils pour des personnes ayant de l'expertise en Syndrome de Stiff-Person pour des personnes qui viennent d'être diagnostiquées avec le Syndrome de Stiff-Person

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Stay off the internet until you've learned as much as you can from your doctor. A lot of the information on the Internet is outdated and no longer relevant. It's more likely to scare you than help you.
Also don't immediately feel like you've been issued a death sentence. You may have to make changes to your life but you'll still be able to live a good life if you try.
Not everyone in your life is going to understand what is going on with your health. Stay away from negative people. Stress is especially bad for Stiff Person.

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