Est-il facile de trouver un partenaire ou de le garder quand vous avez la Sclérose tubéreuse?

Des personnes ayant une expérience avec la Sclérose tubéreuse donnent leur opinion sur s'il est facile ou non d'avoir un partenaire ou de le garder quand vous êtes diagnostiqué avec la Sclérose tubéreuse. Quelles sont les difficultés d'avoir une relation amoureuse ?

Original


I think what I've seen is that sometimes my husband feels like he can't help me and feels like he should be able to help me when it comes to anything with my disease. I think you just take it a day at a time I know I am about to go through another surgery here in October a partial nephrectomy where they are going to remove part of my kidney and the AML and if they grow over a certain margin at least what my urologist said they can hemorrhage which I've had happen before. Also, I just feel if you talk it out and have communication with your partner and learn about it and like for me I reassure him that it's going to be okay.

Traduit