Quels conseils donneriez-vous à une personne qui vient d'être diagnostiquée avec le Syndrome de Usher?

I know it is very hard to be diagnosed with this awful disease and that it will have a great impact on your future life. But Usher Syndrome isn't the end of the road. I think one lesson would be the most important lesson you could ever get, focus on your ability - the awesome things you can be, or can do. Think big, not small. Other people have problems to. You are special and you have a great life ahead of you.