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What is the life expectancy of someone with Granulomatosis with Polyangiitis (GPA)?
Life expectancy of people with Granulomatosis with Polyangiitis (GPA) and recent progresses and researches in Granulomatosis with Polyangiitis (GPA)
This can very greatly depending on how quickly the proper diagnosis is made and how quick it can be put into remission !!!! One major factor is to have the person treating you to be familiar with the disease !!!! And of course the initial health of person that is affected by the disease !!! Better treatments are being tested all the time !!! So keep up on the latest finding not just in your area but around the world !!! You might have to travel to get better care !!!!
Posted Jul 26, 2018 by Leo 1500
It varies, I’d like to think I’ll live forever
Posted Jul 30, 2018 by Terry 2500
Hard to tell it seems, but that's the case for all living people. When I first became ill my GPs thought I had myeloma and a chest X-ray showed a possible lung cancer or TB so I hurriedly got my non-funeral plans ready! I intend to get a living will in place asap just in case of any happening when I may want to refuse certain treatments. That was a wakeup call indeed then I got high on the steroids which caused a lot of chaos and misunderstanding - it certainly prompted me to sort out my close friend and family list! Now I have my diagnosis it doesn't seem so bad, yes I can't do what I used to but am so much better since having 2 Rituximab treatments and the doctors I have here in Leicester are wonderful, I was very lucky to be diagnosed as quickly as possible, so saving my kidneys and joints I am sure. I am happy and not worried, trusting in my consultant who told me to ring her if I get any more symptoms, like the wound on one leg which appeared when joint pains started. I love to get up in the morning and plan my day, have carried on volunteering for Cruse Bereavement Care, which is very important for me and am an active campaigner for DyingInDignity, have been for a number of years. So life goes on mostly as before, now the worst is over, doing things more slowly and not overdoing one thing, appreciating life and all it offers, having meaningful encounters or conversations with others, taking up opportunities as they come my way.
Posted Mar 25, 2019 by Ann 100
