Is it easy to find a partner and/or maintain relationship when you have Hereditary Hemorrhagic Telangiectasia?

People with experience in Hereditary Hemorrhagic Telangiectasia give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Hereditary Hemorrhagic Telangiectasia. What are the possible difficulties in having a relationship?

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Stories of Hereditary Hemorrhagic Telangiectasia

HEREDITARY HEMORRHAGIC TELANGIECTASIA STORIES

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Hereditary Hemorrhagic Telangiectasia stories

LONG PEDIGREE OF HHT

I began having nose bleeds at age 5, I wasn't scared because I'd seen so many family members have them. Because they became so bad I was taken to ENTs and Hematologist, where I was actually diagnosed after they examined my father. In 1993 my 2nd chil...

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3/11/16, 8:49 PM by Audrey

HHT OR OSLER WEBER

With 1 in 5000 people, many more don't even know! The sad thing I have learned about HHT is the lack of knowledge by family physicians. I was very lucky I have a doctor who is young and learned a small amount about in medical school. I was a Ch...

571

3/11/16, 4:08 PM by Kevin

GOT DIAGNOSED IN 2010. DON'T KNOW MUCH ABOUT IT. MY MAM KNOWS MORE AS IT WAS ONLY AFTER SHE HAD A STROKE THAT SHE WAS DIAGNOSED WITH IT.

520

3/11/16, 3:19 PM by Chris

MOTHER OF...

A young child with HHT. And on the waiting list myself.

510

3/13/16, 9:45 PM by L.

AGING WITH HHT

I started having nosebleeds in my 20's, but it was much later when my cousin informed me HHT runs in our family. It hasn't slowed me down much, just nuisance nosebleeds, but as I approach 70 they are getting worse. What I've been doing seems less...

349

8/16/17, 5:33 PM by rickp99

Is it easy to find a partner and/or maintain relationship when you have Hereditary Hemorrhagic Telangiectasia?

People with experience in Hereditary Hemorrhagic Telangiectasia give their opinion on whether it is easy or not to have a partner or to maintain a realationship when you are diagnosed of Hereditary Hemorrhagic Telangiectasia. What are the possible difficulties in having a relationship?

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Couple and Hereditary Hemorrhagic Telangiectasia

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