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It is strongly encouraged to join a local bleeding disorder chapter (National Hemophilia Foundation - http://www.hemophilia.org -- or Hemophilia Federation of America - http://www.hemophiliafed.org/), or if dealing with a pediatric case, working with national nonprofits for support (Gabby's Love Foundation - http://www.GabbysLove.org). These nonprofits can be a strong foundation to start with. Research online may yield limited, or mixed results; however, working with these bleeding disorder nonprofits can provide a ton of useful data, advocacy, and often times support in several ways.