Che consigli daresti ad una persona a cui è stata appena diagnosticata la Displasia Fibrosa?

Consigli delle persone con esperienza nella Displasia Fibrosa per le persone a cui è stata appena diagnosticata la Displasia Fibrosa

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Not much was known back when I was told so I had no idea until it started growing again after 33 years. Join these closed FD groups and dialog among yourselves. Be your own advocate! Don't let a physician do an unnecessary surgery just because he wants to play with something rare, only if you truly need it! For surgery causes it to grow!

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