Che consigli daresti ad una persona a cui è stata appena diagnosticata la Fascite Necrotizzante?

Consigli delle persone con esperienza nella Fascite Necrotizzante per le persone a cui è stata appena diagnosticata la Fascite Necrotizzante

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The best advice is to ask questions, as much as you can. Knowing what is going on, or having someone close to you with you who can ask these questions, is important also. Keep pushing for answers, and new treatments. I do wish I would of had other people on my list of people who they could talk to about my condition, such as my sister who is a nurse, and parents, etc... would have been helpful. I know with HIPPA now, there seems to be a less amount of people you can list on the form. I know when I was in ICU and heavily sedated, my sister was there and she was telling the nurses to keep the tv or radio on, that having the noise/voices was important. I still remember her saying that, she told my parents and husband the same thing. that I could hear everything and to talk to me as if I were awake and able to talk to them or listen to them.

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