Che consigli daresti ad una persona a cui è stata appena diagnosticata la Sindrome di Stickler?

Consigli delle persone con esperienza nella Sindrome di Stickler per le persone a cui è stata appena diagnosticata la Sindrome di Stickler

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Here's my advice to a parent with a child with sticklers. Get a good Dr who actually knows what stickler syndrome is. Start with the Major cities. Get involved and find us advocates were here to help. It will seem like your child is going through hell but you the parent must remain calm and remember your baby will be ok.

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