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One thing that everyone needs with this disease is support! Whether you have family and friends that are there for you to listen to you, take you to doctors help you when your pain gets uncontrollable. Unfortunately a lot of us have family but after a while seem to be there less and less. Several lose family and friends because of this disease which if hard to believe. Get on a support group there are numerous and they really help to learn what is happening, medicines that are helping others, doctors and clinics that know about CRPS. Unfortunately most doctors and nurses do not know anything about CRPS. The groups are wonderful to have people that really know what you are saying about your pain and how bad it is. Help educate others!! We need everyone to know about this disease so we can finally get a cure or at least help.
Also something I am doing to seeing a psychiatrist. Someone to listen about what I’m going through at home. With people making comments like it can’t be that bad. That’s all she talks about. CRPS is called the suicide disease for many reasons. Only people that have it truly understand!