エールラスダンロスの人は働くことができますか? 彼らはどのような仕事をすることができますか?

エールラスダンロスの影響を受ける最悪の症状を見てください

元の


My most debilitating is dysautonomia and orthostatic hypotension from classical with weak veins. My daughter had a major brain hemmorrage less than a year ago because of eds 2 or 3, we are currently gene tested for an unknown mutation of type 2 but still diagnosed 3 because it is unknown. For my children and I, weak veins (from whatever type) that cause labile vitals and might take our lives would be what I would change.

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