グッドパスチャー症候群の人は働くことができますか? 彼らはどのような仕事をすることができますか?

グッドパスチャー症候群の影響を受ける最悪の症状を見てください

元の


For me personal, pulminary hemorrhaging was the worst. When you're lungs are due to collapse and you end up in ICU is definitely a scary thing. Any blood loss is so dangerous to the haemoglobin levels of a GPS sufferer. Just maintaining a low, but acceptable level of Haemoglobin can be changing or several cycles of blood transfusions would needed. Water retention is also a factor while needs to monitored strictly. In my case, too much weight gain and water retention led to relapse of GPS

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