あなたはちょうどHFE遺伝性血色素症と診断された人にどのアドバイスをしますか?

HFE遺伝性血色素症で診断されたばかりの人々に対するHFE遺伝性血色素症の経験を持つ人々からのアドバイスを参照してください

元の


Treat the condition seriously but don't let it get you down.
A diagnosis of haemochromatosis is usually a very positive thing.
Begin treatment as recommended by your doctor.
Join your national support group, learn about your condition and work in partnership with your doctor to manage the condition for the rest of your life.
Investigate whether you can donate your blood as part of your treatment.
VIP - ensure all of your immediate family members (parents, brothers, sisters and adult children are tested at they may also be at risk.

Translated