あなたはちょうどHFE遺伝性血色素症と診断された人にどのアドバイスをしますか?

HFE遺伝性血色素症で診断されたばかりの人々に対するHFE遺伝性血色素症の経験を持つ人々からのアドバイスを参照してください

元の


See the answers given further up.

In addition:

Please do not despair if you have to wait for a couple of months before your treatment starts. It is normal for high level of Ferritin that you do phlebotomy once per week during the first weeks/months. It is also normal with a short peak up on the Ferritin level after you have had some of the first phlebotomies. It is also normal that the Transferrin Saturation only drops below 45-50 % at he the very end of the series of phlebotomies and when the Serum Ferritin drops below 50. It also take some time before your extreme tiredness disappear.

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