Hydranencephalyの人の平均余命はどれくらいですか?

Hydranencephalyの人々の平均余命およびHydranencephalyにおける最近の進歩および研究

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The life expectancy of individuals with Hydranencephaly is statistically noted as a few months to a year. The reality, however, is that children with Hydranencephaly oftentimes live many years with an optimistic care team and strong, educated parent advocates - the oldest recorded via Global Hydranencephaly Foundation was 33 years old at passing. There is no way to predict the accurate life expectancy for a child with this diagnosis. Learn more at www.ghf.life

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