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Unfortunately the advances in Madelungs Deformity are very much trial and error based with each individual.
As far as I am aware the research into Madelungs Deformity is on hold.
The Madelungs Deformity Charity is raising funds so research can be re started in the hope that one day a cure can be found.
The charity fundraising page is www.givey.com/madelungsawareness