眼球咽頭筋ジストロフィーの人の平均余命はどれくらいですか?

眼球咽頭筋ジストロフィーの人々の平均余命および眼球咽頭筋ジストロフィーにおける最近の進歩および研究

元の


Since my granddad passed away 25 years ago due to OPMD. I cannot see big improvements on the cure/treatment of this disease. To be honest, we are very little group of people in the world with this disease and I do not know how much effort/money would invest any pharmaceutical in us :-(

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