あなたはちょうどOsteopetrosisと診断された人にどのアドバイスをしますか?

Osteopetrosisで診断されたばかりの人々に対するOsteopetrosisの経験を持つ人々からのアドバイスを参照してください

元の


I was born with it so it was natural for me to accept i have this disease. Over time I knew I had to limit myself. I would tell people that it is not the end of the world. Your mind is still sharp so use it. The body doesn't control my mind, but otherwise my mind controls my body.

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