あなたはちょうどピエール・ロビン症候群と診断された人にどのアドバイスをしますか?

ピエール・ロビン症候群で診断されたばかりの人々に対するピエール・ロビン症候群の経験を持つ人々からのアドバイスを参照してください

元の


Rightt now the condition probably seems really scary but things will get better. I remember being told this and not believing it, it felt like one thing after the next. Try and talk to people that have children with prs for reassurance, get advice from your cleft team and try not to panic. The jaw comes forward the cleft can be fixed and by the time your child's 2 you won't see many differences with other children their age.

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