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Find a good team of doctors. Be your own advocate. Be aware that you will know more about your disease than most doctors. Join the Relapsing Polychondritis support Facebook page. Be prepared for set backs. You will start full of hope that you will have the disease under control and you will try to look for triggers that cause a flare. There is no rhyme or reason as to why or when a flare will happen. Set backs will occur. Just get back up and keep going.