Begonya Nafría

48 年

en

es

私について

I'm the coordinator of a research platform 2.0. The name is Rare Commons an is a tool for clinical research on rare diseases that affect children.

接触

Educational Sciences Degree.

Eupati Felow.

Rare Diseases Summer School of Eurordis.

Patient Advocacy Manager in Hospital Sant Joan de Déu since 2015.

Research Techinican in CIBERER (Patient Advocacy Manager) from 2013 to 2015.

Community Manager for different entities and projects  (from 2010 since nowadays).