レット症候群の人の平均余命はどれくらいですか?

レット症候群の人々の平均余命およびレット症候群における最近の進歩および研究

元の


I don't know the actual life expectancy. I do know of several girls who have made it to the 40s and 50s. My daughter is 22. I think seizures endanger her life the most. She has been intubated to stop seizure activity, and that was very scary.

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