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How do I know if I have Klippel-Feil Syndrome?

What signs or symptoms may make you suspect you may have Klippel-Feil Syndrome. People who have experience in Klippel-Feil Syndrome offer advice of what things may make you suspicious and which doctor you should go to to receive treatment

Do I have Klippel-Feil Syndrome?
2 answers
Symptoms I had to watch for and that were misdiagnosed in my mother are: numbness, tingling, weakness. We found mine because I held my head to one side, and we asked orthopedist about it, because when I got to jr high people kept asking me why My head was crooked, idk so I asked my mom. She looked back at all my pictures to when I was a baby and we found I’d held it that way all the way back. Also short necks, low hairline in back are 2 visible outside the body.

Posted Apr 27, 2019 by Heidi 1600
You will go to specialists who will give you the diagnosis.

Posted Jan 11, 2021 by Line 1600

Do I have Klippel-Feil Syndrome?

Klippel-Feil Syndrome life expectancy

What is the life expectancy of someone with Klippel-Feil Syndrome?

11 answers
Celebrities with Klippel-Feil Syndrome

Celebrities with Klippel-Feil Syndrome

3 answers
Is Klippel-Feil Syndrome hereditary?

Is Klippel-Feil Syndrome hereditary?

5 answers
Is Klippel-Feil Syndrome contagious?

Is Klippel-Feil Syndrome contagious?

5 answers
ICD9 and ICD10 codes of Klippel-Feil Syndrome

ICD10 code of Klippel-Feil Syndrome and ICD9 code

3 answers
Natural treatment of Klippel-Feil Syndrome

Is there any natural treatment for Klippel-Feil Syndrome?

4 answers
Living with Klippel-Feil Syndrome

Living with Klippel-Feil Syndrome. How to live with Klippel-Feil Syndrome?

4 answers
Klippel-Feil Syndrome diet

Klippel-Feil Syndrome diet. Is there a diet which improves the quality of l...

3 answers

World map of Klippel-Feil Syndrome

Find people with Klippel-Feil Syndrome through the map. Connect with them and share experiences. Join the Klippel-Feil Syndrome community.

Stories of Klippel-Feil Syndrome

KLIPPEL-FEIL SYNDROME STORIES
Klippel-Feil Syndrome stories
I am 24 years old and I live in Denver, Colorado. I was diagnosed with KFS since I was 2-4 and I have bilateral hearing loss with chronic respiratory illness. I am also a medical cannibis user, which may falter my breathing, but I am an active person...
Klippel-Feil Syndrome stories
I was diagnosed with kfs type 4 as a child. It was challenging. I was never able to do sports and was always treated like glass. Which made it hard to find friends. At age 15 I underwent a 16 hour extensive surgery to save my life. After I was suppos...
Klippel-Feil Syndrome stories
Was diagnosed when he was couple days old. He had heart value that wouldn't closed and it healed on its own, he was born with multicyst kidney so he only has one kidney. Mental and development delays, 4th n 5th vertebrae infused giving him short neck...
Klippel-Feil Syndrome stories
she has been suffering tremendous pains and she hasn't find a doctor that can help her, she had a surgery but it was done wrong.  
Klippel-Feil Syndrome stories
Our daughter has Klippel-Feil c3-c6, torticoli, sleeping apnea, cervical ribs and fused ribs, spinal bifida occulta, and scoliosis which is cause by a extra vertebrae 

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Klippel-Feil Syndrome forum

KLIPPEL-FEIL SYNDROME FORUM

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