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What is the life expectancy of someone with Klippel-Feil Syndrome?
Life expectancy of people with Klippel-Feil Syndrome and recent progresses and researches in Klippel-Feil Syndrome
Well for most.you can live a normal life span.Although i did reasearch based on my symptoms,because i have a slightly enlarged heart,and some kidney issuse from time to tome.The info i found along with those two variables along with kfs says..35-45 years old.
Posted Oct 21, 2017 by michael 100
The long-term outlook (prognosis) for people with Klippel-Feil Syndrome varies depending on the specific features and severity in each affected person.
In general, people with minimal involvement can lead normal, active lives and may have no significant restrictions or symptoms. People with additional abnormalities and/or severe forms of the condition may require careful and routine follow-up, but can have a good prognosis if symptoms and complications are treated early.
Complications associated with Klippel-Feil Syndrome do not normally develop before the age of 25 years and some may be treated surgically.
But because Klippel-Feil Syndrome is progressive and depending upon the severity of other conditions associated with it, it's been found that the life expectancy can be between 30 - 45 years old, in some cases, not all.
In general, people with minimal involvement can lead normal, active lives and may have no significant restrictions or symptoms. People with additional abnormalities and/or severe forms of the condition may require careful and routine follow-up, but can have a good prognosis if symptoms and complications are treated early.
Complications associated with Klippel-Feil Syndrome do not normally develop before the age of 25 years and some may be treated surgically.
But because Klippel-Feil Syndrome is progressive and depending upon the severity of other conditions associated with it, it's been found that the life expectancy can be between 30 - 45 years old, in some cases, not all.
Posted Nov 13, 2017 by Tiffany 1100
I’m currently48 years old so I have outlived what they currently say.
Posted Apr 27, 2019 by Heidi 1600
I am 56 years old and live in a large city with bad air quality
Posted Aug 6, 2019 by Sonja 100
I am 50. I’m currently seeing a doctor to find a referral. Hope my doctor will be able to help me find a doctor to see if I do indeed have KFS.
Posted Jan 10, 2021 by Michelle 100
Depends of the degree. Hard cases = mid 30’s. Mild cases = normal life expectancy.
Posted Jan 11, 2021 by Line 1600
j'ai 36ans pour instant j'ai une qualité de vie stable
Posted Jan 13, 2021 by Maxmalice 1150
I am a male with KFS and 53 yrs old
Posted Jul 15, 2022 by Greg 100
