세부
CVS Speaks
11 연령
en
나에 대해서
We are an all volunteer advocacy group for CVS. Our mission is to validate, encourage and support CVS sufferers and their caregivers. We have networked many good support groups on Facebook, including a focus group that is being used to collect data and prepare research for future media resources to bring about more understanding from the medical community. We have authored books and produced awareness videos that can be seen on our YouTube channel. We also have an "Education Library" which houses dozens of research articles and other information especially helpful for the newly diagnosed. While a website is in our future, we can be found at Www. Http://Facebook.com/cvs.speaks
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