Living with Leukodystrophy. How to live with Leukodystrophy?
Can you be happy living with Leukodystrophy? What do you have to do to be happy with Leukodystrophy? Living with Leukodystrophy can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Leukodystrophy
Even though my girls were not able to talk they said so many things through their eyes and I know as a mom their likes dislikes when they're happy sad you just pick up on their vibe.
Lauren was diagnosed with Hypomyelnation and Atrophy of the Basal Ganglia and Cerebellum (H-abc) Leukodystrophy at the age of 6 months by the neurology team at The Children's Hospital of Eastern Ontario.
Lauren is blind, non-mobile, non-verb...
My father had AMN but was misdiagnosed as having MS. He died at the age of 49 due to adrenal failure. My nephew Danny started having problems when he was about 9 years old and that is when the diagnosis of ALD was given and we figured out that was wh...
O meu filho, Guilherme foi diagnosticado em Janeiro 2014 com Leucodistrofia Metacromática. O primeiro sintoma foi com perda na marcha foi o que nos despertou a atenção de que poderia ter alguma coisa. Em Portugal não existe tratamentos, mas desco...
I wouldn't mind being an ambassador, but I don't have this crappy disease, I am only a carrier. My son had the disease and he died in 1977. Also I don't think I can afford a DNA test... isn't there another way to become an ambassador?