7

Living with Lupus. How to live with Lupus?

Can you be happy living with Lupus? What do you have to do to be happy with Lupus? Living with Lupus can be difficult, but you have to fight to try to be happy. Have a look at things that other people have done to be happy with Lupus

Living with Lupus
Translated from spanish Improve translation
Living with lupus is not easy. Lupus is not a disease of a day or a week. It is a chronic disease with which we have to live the rest of our lives to not be discovered before the cure (something that seems closer every time). Years living with different symptoms, such as pain, fatigue, exhaustion, and different medical problems that are emerging. Anything that being good is simple to make, with pain or exhaustion is hard, that life is more complicated if you suffer from lupus. There are better times in which the disease gives us a breather and times worse in the that, due to an outbreak or worsening of the disease symptoms can be very disabling. You can still be happy. You have to learn to enjoy the small things in life. Don't look at what you can't do that when you have lupus, but in all the things that you can keep doing and learn to enjoy them. Choose the path that you would like to go and be happy by wading into it. No matter the destination, matters savoring every moment of the trip. In life we play a few cards that we can not choose, but we can learn how to play with them. With the best hand of poker you can lose the game and with the worst cards you can win. With the worst of circumstances you can get to be happy and with the best circumstances you can be unhappy. Don't expect to be best for you to start to enjoy or to be happy. Perhaps in a few months or years when you're worse and you would give anything to be as you are today. So enjoy the day even if you aren't feeling at all well, enjoy it, grab it and savor every moment that gives you life. That day will be passed and will not return. Only us will be the memories of the best moments lived. Find your passion, the reason you're here. Generally helping other people is one of the most rewarding things of life. Help them overcome difficult times or to make them more bearable the way, as we'd like to help us. To share joys and sorrows with other people also boosts happiness. The good things shared are the double of good. The bad things shared are half bad.
Diseasemaps
21 answers
It can & has been very difficult to live with lupus. I have experienced depression & isolation through this disease. I have felt frustrated at the loss of my independence and freedom. I have found counselling, therapeutic yoga and pain management support groups to be effective in returning me to happiness. The support & understanding of my family is probably the most critical component to my happiness. Also fighting through isolation, reaching out to others & learning how to self manage chronic pain is crucial for happiness.

Posted Sep 1, 2017 by Ailsa 2000
Pace yourself, know your current state of health, and stay within those limits. Yes you can be happy.

Posted Sep 8, 2017 by MaryAnn 700
You can be happy. Disease management and proactivity is key. Take all meds, go to all appointments and follow your doctor's advice. Recognize depression symptoms if disease is active and seek help.

Posted Sep 10, 2017 by Tina 1750
Try to do and find things that bring you joy. Find an outlet for feelings and emotions. Keep a journal. Try to prevent flares if possible.

Posted Jan 29, 2018 by Kimcita 2600
Do what the doctors tell you to do, find what medication works for you, keep ypur mind occupied with positive things and laugh as much as you can and refuse to let the disease consume your life.

Posted Dec 12, 2019 by Misspriss580 1750
Always hold onto hope.

Posted Nov 2, 2022 by RonnieJ 3350
Translated from spanish Improve translation
trying to live day to day I guess. It is quite difficult to keep good mood or happiness all the time

Posted Feb 19, 2017 by Stella 1000
Translated from spanish Improve translation
never leave medicines. learn to live with the disease, be positive to consult our doctor regularly and make sport accompanied by a healthy diet

Posted Feb 22, 2017 by Mambo 1101
Translated from spanish Improve translation
Oh you know about our disease, educate ourselves and educate those around us. Accept us and care for us.
The support of our families and loved ones is vital. But above all the love of their own.

Posted Mar 8, 2017 by Verónica 1000
Translated from spanish Improve translation
As any person. By avoiding the sun. Of course q can you be happy. To be happy we must be grateful for each day q woke up.

Posted May 10, 2017 by Suyai 1000
Translated from portuguese Improve translation
Living with Lupus is difficult I'm not going to lie, the pain rare bother you a lot, more the yes with support, love, and faith anything is possible, if you accept and a way to be happy, accept that you have a disease this is not the end of the world, you do not and less human for it, and not call for comments to be offensive and prejudice, if you love very much, not and a weight to be Lupica/o, and a fight that we all win the day, remember the God of your best battles to his best warriors

Posted Jun 7, 2017 by Nataly 1000
Translated from spanish Improve translation
Ok that one has a disease to stop seeing it as a limit, understand that it is a challenge, which is part of one and not hate what is of one. Smile as much as possible and especially to avoid the stress.

Posted Aug 22, 2017 by Giovanna 100
Translated from spanish Improve translation
With lupus, not living it is surviving, but leading a quiet life, with certain routines, being in a group for example of the Face or in associations, surrounding you with positive people, you can be happy especially if you know that you are not alone in the struggle, commenting on what happens to you with people who like you have lupus.

Posted Aug 31, 2017 by Prado 2000
Translated from spanish Improve translation
of course you can be happy, what is important is to have the unconditional support of the family, in addition to have a healthy mind, if it is necessary to go to a psychologist there you go not save anything, and if there are to laugh or to cry do it.

Posted Aug 31, 2017 by lissette 2222
Translated from spanish Improve translation
If you can. You have to accept the enfermerdad know llavarla and not obsess.
If you have a positive attitude you can bring well lupus.

Posted Aug 31, 2017 by Rosa Maria 2000
Translated from spanish Improve translation
LIVING WITH LUPUS IF YOU MAY BE LEADING AN ORDERLY LIFE , TAKING THE
MEDICATION,DOING EXERCISES AND TAKING THE CONTROLS MEDICAL THE DAY... IF YOU CAN LIVE WITH LUPUS AND LEAD A HAPPY LIFE, JUST DEPENDS ON YOURSELF

Posted Sep 2, 2017 by patricia santander galaz 1100
Translated from spanish Improve translation
Enjoy each day take care to not fall happiness depends upon ourselves the desire to get ahead

Posted Oct 3, 2017 by FABIOLA 2010
Translated from portuguese Improve translation
Yes! We can be very happy with Lupus!! We can take advantage of this situation to make a self - knowledge, discover the moments that Lupus is triggered in the body, what the reasons, knowing these reasons will give us the security to deal with this reality. Work these reasons internally to learn how to deal with them. My opinion is that the Lupus is used for a self-profound knowledge, the more vc you know your body, your limitations, your true emotions away from the lupus of your life!

Posted Oct 20, 2017 by Cristiane de Lucena 1000
Translated from spanish Improve translation
We do not choose to live with Lupus but we can choose to live happy! Cheer up!

Posted Oct 21, 2017 by Denis 800
Translated from spanish Improve translation
With lupus and without lupus, you should live to be positive, we have come to this world to be happy, so don't give up and follow your dreams.
Are you mism@, agradecid@ of every day life it allows you to open your eyes and you can see everything around you.
We're not living dead, LIVE!!!

Posted Oct 24, 2017 by Pilita 2190

Living with Lupus

Lupus life expectancy

What is the life expectancy of someone with Lupus?

19 answers
Celebrities with Lupus

Celebrities with Lupus

2 answers
Is Lupus hereditary?

Is Lupus hereditary?

15 answers
Is Lupus contagious?

Is Lupus contagious?

12 answers
ICD9 and ICD10 codes of Lupus

ICD10 code of Lupus and ICD9 code

5 answers
Natural treatment of Lupus

Is there any natural treatment for Lupus?

9 answers
Lupus diet

Lupus diet. Is there a diet which improves the quality of life of people wi...

24 answers
History of Lupus

What is the history of Lupus?

7 answers

World map of Lupus

Find people with Lupus through the map. Connect with them and share experiences. Join the Lupus community.

Stories of Lupus

LUPUS STORIES
Lupus stories
My very long story can be found on my blog below.
Lupus stories
 In 1991 I had an intestinal virus after that I started having multiple health issues. I was never really sick prior to that. I had horrible IBS for 15 yrs. In 2006I started having extreme joint pain. I saw multiple doctors, had multiple MRI's and x...
Lupus stories
After ten years of wrong diagnosis, with the help of a private doctor, I could finally put a name to what i have been suffering for real. Here is the links of the struggle of most who suffer from rare medical conditions; https://anshikasawaram.wordp...
Lupus stories
I've had lupus for 10 years, and I'm living my life the best way I can. If you want to know more, send me a message.
Lupus stories
Hi all.  It took  them 8 years  to  find out what  was  wrong.  At one stage  they told me after an other  visit to  a different  specialist ( as you know  lupus  can manifest  it self in many different ways) to  see  a head srink  a...

Tell your story and help others

Tell my story

Lupus forum

LUPUS FORUM
Lupus forum
Has anybody suffer episodes of low temperature? Is it related to Lupus?

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map