8
Which advice would you give to someone who has just been diagnosed with Maple syrup urine disease?
See some advice from people with experience in Maple syrup urine disease to people who have just been diagnosed with Maple syrup urine disease
To parents, hang in there, its a crazy tough beginning but it gets easier ❤
Posted Mar 12, 2017 by Oliver 1270
Don't panic or stress. Look to us for support. You can find us on Facebook or even through the MSUD newsletter. Many of us have been living with MSUD for 20+ (or even 30+) years. It may seem scary at first, but eventually, it will just become a routine. MSUD is not the end, it's merely the beginning of a different path on a new journey.
Posted May 29, 2017 by Christine Cahill 2000
