1

Which are the symptoms of Marfan Syndrome?

See the worst symptoms of affected by Marfan Syndrome here

Marfan Syndrome symptoms
9 answers
I my life the worst symptoms are the pains I feel on a regular basis throughout my entire body mostly back & hip. Also heart palpitations which can hurt.

Posted Feb 27, 2017 by Griet 1000
It would be best if i dont have constant joint pains

Posted Oct 15, 2017 by Bonita 950
The heart issue. If I could get rid of some symptoms first the migraine. Next the body ache.

Posted Oct 16, 2017 by Lovely May 500
Growing up it was a protruding chest. Medically the distended aorta is a serious issue. The Extreme Fitness growing up was also an issue.

Posted Oct 16, 2017 by Dave 100
Scoliocis (Spine / Back)
Heart Proplems
Eye problems

Posted Oct 16, 2017 by Henrik 1600
Each person have diferent manifestations. The most common are the aortic dissection and retinal detachment

Posted Oct 4, 2018 by Antonio 350
Aorta dissection
Bones that Hurts
Sleep apnea

Posted Jan 21, 2020 by Birgit Ottilie Madsen 1220
Translated from spanish Improve translation
Marfan syndrome is a disease that affects the connective tissue. Has a genetic origin and tends to cause disturbances in the eyes, the skeleton, the heart and the blood vessels.
The skeleton. Are people often very high (in comparison with the other members of the family) and thin, with long limbs and joints with a lot of mobility. The fingers and hands are long and thin with aspect of the spider, the face long and narrow protrusion or depression of the breastbone, deviations of the spine, etc
The heart and the blood vessels. The alterations in these structures are the main cause of death of these people. One of the most important is the dilatation of the aorta the weakness of your wall, and may even tear or rupture. Also problems can occur at the level of the heart valves: aortic insufficiency or prolapse of mitral valve.
The eyes. Myopia, cataracts, dislocation (luxation) of the lens or detachment of the retina, are the most common problems that tend to have people with Marfan syndrome.
Other alterations. Pneumothorax (collapsed lung), inguinal hernias, stretch marks on shoulders and buttocks, etc

Posted Apr 15, 2017 by Carola 1360
Translated from spanish Improve translation
Dilatation of the aorta can lead to aneurysms. It can be deadly.
I would take this dilation with some treatment.

Posted Oct 5, 2017 by Helena 2550

Marfan Syndrome symptoms

Marfan Syndrome life expectancy

What is the life expectancy of someone with Marfan Syndrome?

8 answers
Celebrities with Marfan Syndrome

Celebrities with Marfan Syndrome

1 answer
Is Marfan Syndrome hereditary?

Is Marfan Syndrome hereditary?

8 answers
Is Marfan Syndrome contagious?

Is Marfan Syndrome contagious?

7 answers
ICD9 and ICD10 codes of Marfan Syndrome

ICD10 code of Marfan Syndrome and ICD9 code

6 answers
Natural treatment of Marfan Syndrome

Is there any natural treatment for Marfan Syndrome?

6 answers
Living with Marfan Syndrome

Living with Marfan Syndrome. How to live with Marfan Syndrome?

6 answers
Marfan Syndrome diet

Marfan Syndrome diet. Is there a diet which improves the quality of life of...

9 answers

World map of Marfan Syndrome

Find people with Marfan Syndrome through the map. Connect with them and share experiences. Join the Marfan Syndrome community.

Stories of Marfan Syndrome

MARFAN SYNDROME STORIES
Marfan Syndrome stories
After taking a decongesant with a stimulant my doctor noticed my chest moving up and down with my heartbeat. I was visiting her office for an ear infection. She performed an EKG. She then suggested a Holter Test. The Holter Test showed an ST Depressi...
Marfan Syndrome stories
My story may be quite different than most.  I was adopted when I was 4 months old.  Growing up, I didn't gain weight, had pain with my feet and legs, and started wearing glasses at age 8.  My adoptive parents took me to doctors all my life.  The ...
Marfan Syndrome stories
Hi Everyone! I want to know all of you, at least in West Central Florida, USA. 37 years old Insurance through ACA, single plan Part time work graphics designer making barely a few dollars over poverty to activate ACA Florida is a "dead zone" sta...
Marfan Syndrome stories
AD at Februar 2010 strong survivor
Marfan Syndrome stories
Hi, my name is amber and I have Marfan Syndrome. I was diagnosed when I was 5yrs old. My father had it and he had passed away from it. It was been a adventure dealing with this my whole life but I have met some great people along in my journey.

Tell your story and help others

Tell my story

Marfan Syndrome forum

MARFAN SYNDROME FORUM
Marfan Syndrome forum
Hello everybody,  my son suffers marfan syndrome. At the moment he only wears glasses, but we contemplate the possibility of surgery... after the operation, the eyes syntomps can get worse?  thanks for the advice
Marfan Syndrome forum
For details on the Aortic Dissection Awareness Week Events, please click Here For information about the speakers for the Medical Information day, please click Here.          ​ The John Ritter Foundation for Aortic Healt...

Ask a question and get answers from other users.

Ask a question

Find your symptoms soulmates

From now on you can add your symptoms in diseasemaps and find your symptoms soulmates. Symptoms soulmates are people with similar symptoms to you.

Symptoms soulmates

Add your symptoms and discover your soulmates map

Soulmates map