- Mixed Connective Tissue Disease (MCTD)
- Interviews
Tatiad66's interview
How did all start?
fatigued, hand pain, raynauds, joint pain, rashes, muscle weakness
Do you already have a diagnosis? How long did it take you to get it?
Diagnosed more than three years after onset of symptoms.
For what medical specialties have you been treated? What has been the most useful specialty for your?
Rheumatologist
What has been the most useful thing for you so far?
Pain medications and steroids
What have been your biggest difficulties?
Loss of function, decreased mobility , and debilitating fatigue.
How has your social and family environment reacted? Have your social or family relationships changed?
Loss of social activities, loss of contact with former co-workers. Spouse is having to manage more household tasks.
What things have you stopped doing?
Outdoor activities, swimming, biking hiking, beach, traveling, work,
What do you think about the future?
Only existing,
So far, which years have been the best years in your life? What have you done during them?
Before this disease!
Trsveled, lived life to the fulldst. Had fun!
What would you like to do if you didn’t have your condition?
Trsvel, be outside within on my fscs, hiking, kayzking, g
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If you had to describe your life in a sentence, what would it be?
Nonexistent
Finally, what advice would you give to a person in a similar situation?
Get a good MD. PUSH for answers.
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