Help us to help more people
  2. Moebius Syndrome
  3. Stories

A Moebius Syndrome story

Aug 6, 2016

Moebius Syndrome
My first grandchild was born with Moebius Syndrome.  He is 9 months old.  He has had one eye surgery (so far) and has clubfoot and will be having foot surgery on August 17.  I would like to get to know other family members who have children or grandchildren with this disorder.  I have done extensive research and I have a deep understanding of it.  I may be in a position of raising my grandson so I just want to connect with others living with this condition.

Know someone who should read this story? Share it

Tell my story
0 comments

Login or register to leave a comment

Moebius Syndrome jobs

Can people with Moebius Syndrome work? What kind of work can they perf...
Moebius Syndrome cure

Does Moebius Syndrome have a cure?
Moebius Syndrome advice

Which advice would you give to someone who has just been diagnosed wit...
Moebius Syndrome diagnosis

How is Moebius Syndrome diagnosed?
Moebius Syndrome causes

Which are the causes of Moebius Syndrome?
Moebius Syndrome diet

Moebius Syndrome diet. Is there a diet which improves the quality of l...
Is Moebius Syndrome contagious?

Is Moebius Syndrome contagious?
Moebius Syndrome prognosis

Moebius Syndrome prognosis