Which advice would you give to someone who has just been diagnosed with Multiple Chemical Sensitivity?

See some advice from people with experience in Multiple Chemical Sensitivity to people who have just been diagnosed with Multiple Chemical Sensitivity

Posted Mar 30, 2017 by KilkennyGirl 1000

DO NOT think you are alone. DO NOT think this is a death sentence. DO find support groups and like-minded companies that cater to the MCS community

Posted Oct 9, 2017 by Andrew 1300

To someone diagnosed with MCS, I would say be patient and stay connected.

Posted Oct 24, 2017 by Paul 3000

Breathe! This is not a death sentence! You can do this! Start by eliminating toxins from your diet and environment. Learn all that you can. Knowledge is power.

Posted Oct 27, 2017 by JLMcK 5550

I recommend that anyone with MCS do DNRS even if you don't want to.

Posted Oct 28, 2017 by Katya 1042

It seems impossible to live with it at first, but there are lots of people who have learned to live with it, it gets better. Don't lose hope.

Posted Apr 12, 2018 by needinfo&help 1500

Do your best to avoid exposures.

Posted Jan 6, 2019 by Cindi 3050

When I was first experiencing symptoms I had no one to consult with. Because it was a new condition in the sense there is little medical help available to me I was worried that I was crazy. You are not crazy. Your symptoms are real. Connecting the cause to the effect can be challenging as it can be many hours after exposure to a toxin that symptoms occur. Document the symptoms and learn what your triggers are.

Posted Mar 26, 2019 by Sharon 1300

You're not going to die of it!

Posted Apr 1, 2019 by Susan 2500

Throw out ALL of the scented stuff that you have. Avoid shaking hands. Buy your own laundry machines.

Posted Apr 9, 2019 by MCSzombie 6220

Stay away from harsh scents. Do research and learn what works for you, what doesn't. Seek support.

Posted Jun 4, 2019 by Heather 3000

Keep safe, listen to your body, don’t ignore your symptoms, keep a journal of your reactions, your triggers, everything. Request a copy of your discharge letters after every treatment, file it under ‘what to take to every appointment’ Make changes that suit you, not anyone else, don’t react to negativity, it breeds resentment, which can turn inward, you can change your condition with good management but you can’t change people’s opinions.

Posted Aug 22, 2019 by Carmen Rosemarie 2550

Clear your world of toxins: Molds, fragrance, petrol, cigarettes and even toxic people. Sleep outside if yopu must, but do not continue with the triggers, before you try to heal.

Posted Nov 18, 2019 by Angie P. 5000

Do not keep doing the same things; you need to stop, think, and protect yourself from further exposure.

Posted Dec 12, 2019 by Joanna 6200

Educate yourself as much as you can regarding personal care products and detergents; not just cleaning supplies.

Posted Jan 24, 2020 by Tiffani 1300

Find your knees and pray. GOD definately is they key to survival of this disease! Find the trigger of your MSC and eliminate ALL things that trigger it! Make rules to keep for friends and family! Stick by your rules!

Posted Jan 30, 2020 by Noeleen 2500

See “how to live with MCS” question above.

You must cleanup your home and diet and try to avoid exposure to anything that will cause a reaction. Know that it is not not the end of the world and you are not alone.

Posted Feb 11, 2020 by Rheama 1600

Eat healthy organic food
Replace all the toxins in your home with safe alternatives
Get as much fresh air as possible
Invest in a good air cleaner
Invest in a good water filter

Posted Mar 31, 2020 by Judie 1860

"Just getting diagnosed" is rarely a surprise.
I find that doctors don't volunteer this diagnostic.
Patients usually fight for it.

Posted Sep 27, 2020 by Rebecca St. Martin 3570

Take it slowly. For now, pick justv1 or 2 things to change- dont try changing everything at once.

Posted Nov 12, 2020 by shelley 3650

If you are newly diagnosed, STOP EATING SUGAR OR CARBS! They will make the chemicals worse and you will become more sensitive to more things. I did not believe the literature. I did not believe someone could have this illness. In the first few months, I didn't listen to the doctors who told me not to eat sugar. I was only sensitive to cigarette smoke in the beginning. I don't know what would have happened had I stopped eating sugar. I'll never know. Now I am sensitive to everything. Believe the stories people tell you about MCS. It is real and it exists. Sugar makes it worse in every way for me. Carbs also aren't good.

Posted Feb 21, 2021 by Christi 2350

Get support from others who have mcs and avoid contact w triggers. Work a brain retraining program.

Posted Jul 24, 2021 by Serenity 2500

Remove all fragrances (perfume/cologne/aftershave, air "fresheners", deodorants, lotions, soaps, body sprays, scented laundry products, shaving creams, etc.) and all toxic cleaning products from your home immediately. Check your house for mold and have it remediated if it is found. If you smoke, quit. Begin an organic, whole foods diet free of additives.

Posted Nov 11, 2021 by kola05 2620

You are not alone. There are thousands of people like us.

It is very hard for people to understand you, and that's ok.

You will find a way. Just avoid chemicals, processed foods, large. gatherings were you expect people to use a lot of perfume.

Try to move to a beach where you can feel better. I've found that I do best in tropical climates.

Posted Nov 3, 2022 by Eduardo 1700

Translated from spanish Improve translation

DO NOT FALL INTO THE HANDS OF PSEUDOMÉDICOS OR ALTERNATIVE MEDICINES, WHICH SELL IT IMPOSSIBLE REMEDIES
ACCEPT THAT THERE IS NO TREATMENT
MEDICAL ADVICE AND OF ANY ASSOCIATION OF SQM.

Posted May 10, 2017 by Emilio 2070

Translated from spanish Improve translation

that life is not just,a lot of patience everything will go on stabilizing and getting to know the disease you will be able to take it better,avoid toxic from the very first moment you find out to not get worse

Posted Jun 11, 2017 by Esther 1950

Translated from spanish Improve translation

Don't be scared off. To remove the fear. Stop face to those who don't believe etc etc That is the/ it same and of all the enrgia the spent in the and their cure. Care, expand the power of your thoughts and take care of your alimetacion, cosmetic, household products and go to live in a rural area ecological.

Posted Sep 9, 2017 by Karma 1900

Translated from spanish Improve translation

Think not just the world. Obviously you have to change many things (food, hygiene products and cleaning), things that are no longer be able to do, but life goes on. And don't think that this ever going to go to more. A lot of people with MCS is very negative and tells you that you are going to get worse, but don't have a crystal ball, and some get worse does not mean you have to be always so. I also know of cases where people are stabilized at a moderate level from decades ago. There are even people who say they have improved a lot. So to take care of and is already.

Posted Sep 10, 2017 by Pilar 2000