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Which advice would you give to someone who has just been diagnosed with Multiple epiphyseal dysplasia?
See some advice from people with experience in Multiple epiphyseal dysplasia to people who have just been diagnosed with Multiple epiphyseal dysplasia
It's not as scary as it sounds! It is a jumble of possibilities in regards to what symptoms each person experiences, and it is not too well known resulting in minimal resources. Recent years have meant an increase in more widely available treatment options and better advances in technology. So if you need a back brace now-a-days, it is much smaller and less noticeable than ones like what I wore in the early 90s. Be honest with yourself and your limitations without adding unnecessary limits. Lastly, don't bottle what you feel about the whole situation up! Talk to people who can give you support. You do yourself no favors by remaining silent!
Posted Mar 4, 2017 by Sarah 2000
Translated from portuguese
Improve translation
Take care to Postpone to the maximum the evolution of the symptoms.
Posted Nov 19, 2017 by Daniela Corrêa De 2500
