Don't know prevalences necessarily. I surmise there are a few hundred or so of us out there, but not much more due to lack of medical, advanced lifesaving technologies. Unsure too about gender and age.
I was born in the early 80s when medical technology was just beginning to advance. I often dealt with self-esteem issues growing up, but eventually came around and now fully embrace myself. I realized my having Nager Syndrome was much more of a bless...