Noonan Syndrome description. Find out what Noonan Syndrome is and know more about it.

▷ What is Noonan Syndrome

Stories of Noonan Syndrome

NOONAN SYNDROME STORIES

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i was born premature to a mom who lived a very unhealthy lifestyle so even though I was really small and sick, no one really thought much of it. soon they had to take it seriously because I was only getting worse not better. The older I got, the...

938

12/31/15, 10:52 PM by Rebecca (parent name)

MY LITTLE LILY

My Little Lily was born in 2016. She is a twin. Her sisters name is Anna. We all got a surprise when Lily was born as we were expecting her to be a 7.5lb baby but she was only 4lbs14oz. She had trouble feeding as she wouldn't latch and then her blood...

703

2/20/23, 2:49 PM by Lily

LONG, HARD ROAD

my name is bree. my daughter and fiance have noonan syndrome. Arraya was diagnosed at 6 weeks of age with failure to thrive, supravalvular pulmonary stenosis, bilateral cleft palette, poor latch on. the first year of her life we traveled...

668

5/9/17, 3:19 PM by Bree

KAYLA'S STORY

I am 22 I live on my own I have had 21 surgeries, heart-HOCM-now have and ICD, eyes, ears-now have a BAHA I have a drivers license

660

5/20/17, 10:22 AM by Kayla

BETTER LATE THAN NEVER

I was diagnosed at age 12 because of my short stature. I have a cardiac malformation but not usually related to Noonan syndrom. I'm small but at least the same height as my parents, 5 feet 6 inches ! The geneticist found right away which syndrom I ha...

640

5/19/17, 10:24 PM by Guillaume

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Noonan Syndrome forum

NOONAN SYNDROME FORUM

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WHAT CAUSES NOONAN SYNDROME?

It is genetic or does it have other causes?

294

by Louisa

LOOKING TO UNDERSTAND MORE ABOUT NOONAN SYNDROME, SYMPTOMS AND DIAGNOSIS.

Hi I want to learn more about Noonan syndrome. Can you help me?

249

by Sui

What is Noonan Syndrome