Nutcracker syndrome prognosis

i was diagnosed with this four days before christmass-2018, (yah- i thought at first it was a cruel joke). But i now understand a few things about my symptoms that i always brushed off in the past. Knowing now the name for the discomfort thats been with me for decades. The specialist who reviewed my case was evasive, and refused to help, based on the fact i have no insurance. He was very specific about the surgery itself, noting the risk of death on the table, but if i see too much blood in my urine- to immediately go to E.R.,which i fail to understand- if there isnt anything He can do for this issue.There is discomfort, alot sometimes, and it makes me sad, because i dont know how to curb or ease the issue. Interestingly, I am also a Reye Syndrome survivor, which causes me to wonder if maybe this hasnt contributed. The Specialist couldnt offer any answers for remedy or prevention, so, I do what i can. I find that compression helps- using a high waist girdle and eating smaller portions, relaxing with feet elevated after meals also helps alittle with digestion if there is too much discomfort. I am pleased to have visited Your site. It helps to not feel so alone in this situation. Thank You. - Mrs. Jole Workman.

The prognosis depends on the severity of the case. People live with mild symptoms which is referred to as nutcracker phenomenon. Some find difficulty finding a doctor who is knowledgeable or even believe in the syndrome. In my case I was completely debilitated and bedbound with constant unrelenting agonizing pain and nausea. I lost a lot of weight due to not being able to eat. I drank ensure when I was able to survive. I was fortunate to find surgeons who specialize in this and had kidney auto transplant surgery. Unfortunately many people cannot find anyone to help and cannot travel for help due to finances and/or insurance won’t allow. Also there are different treatments available: some people have stents placed in the renal vein which is not a good solution in that stents aren’t made for veins and in many migrate and cause more problems, left renal vein transposition is the only surgery some doctors will offer but is major surgery and has a 50% failure rate. The most successful surgery is a left kidney auto transplant which is major surgery and done by transplant surgeons. They take the left kidney out and detach it from the bladder, shorten the ureter and place it back in the lower pelvis on the right side. I had this surgery and am completely cured of symptoms. For more information regarding this surgery google my surgeons. Dr. Hans Solinger and Dr. Robert Redfield at UW Madison in Wisconsin.

I expect my life to be the same length as it would have been without nutcracker because I am getting surgery. They said the surgery I'm getting is a successful surgery, and I will be able to recover fully back to normal! If you don't get surgery, whenever I did research I read that there was a chance for it to progress and get better on it's own.