A Pachygyria interview .

Poppy's interview


How did all start?

From conception

Do you already have a diagnosis? How long did it take you to get it?

Yes, diagnosed at 2 years of age

For what medical specialties have you been treated? What has been the most useful specialty for your?

Paediatrician, Orthopaedic, Spinal, Genetics, Opthamology, Neurologist

What has been the most useful thing for you so far?

Therasuit Therapy to help her learn to walk Medical Marijuana CBD + CBA

What have been your biggest difficulties?

Communication Sensory Issues

How has your social and family environment reacted? Have your social or family relationships changed?

We have a small community that have totally excepted her

What things have you stopped doing?

Mobility in the past and communicate

What do you think about the future?

I hope she can be fully independent, have friends and be involved in her community

So far, which years have been the best years in your life? What have you done during them?

When she turned 7 she could walk independently without aids gave her freedom like her brother and sister.


Feb 27, 2018

By: Poppy

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