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What is the life expectancy of someone with Panhypopituitarism?

Life expectancy of people with Panhypopituitarism and recent progresses and researches in Panhypopituitarism

Panhypopituitarism life expectancy
2 answers
Having Panhypopituitarism isn't a death sentence by any means. Yes, it is life-threatening in certain emergency situations and there is no cure at this time, but if the disease is cared for properly in accordance with your Endocrinologist, the life expectancy for Panhypopituitarism is usually the same as with someone who doesn't have the disease.

Posted Dec 6, 2018 by Ty 4960
I AM panhypopit having lost my pituitary due to a tumor
and my adrenals are flatline also (checked year after I had the
surgeries in 2003 and both were complicated.
Following the second I had a massive collapse (I had been home one day)
resulted in ICU/MICU due to massive electrolyte/adrenal failure
It was followed by 6 weeks of skilled nursing/rehab to get my electrolytes stabilized and
rehab to enable me to walk again (there had been damage to my brain leaving me with
severe mobility issues.
I am thankful to God and to a physician who was dedicated enough to keep digging until he found
what turned out to be a tumor issue
(the rest of the 'medical' community wrote me off as a disturbed middle age female (bizarre symptoms)

Posted Sep 25, 2022 by BlackRaven135 100

Panhypopituitarism life expectancy

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World map of Panhypopituitarism

Find people with Panhypopituitarism through the map. Connect with them and share experiences. Join the Panhypopituitarism community.

Stories of Panhypopituitarism

PANHYPOPITUITARISM STORIES
Panhypopituitarism stories
Пангипопитуитаризм возник вследствии опухоли гипофиза- краниофарингиомы, нет все гомонов гипофиза, гипофиза тоже нет
Panhypopituitarism stories
In September of 2013 I started to have prolonged headaches. I went to several doctors and a chiropractor but no one seemed to know why I was having headaches. I finally went to the ER and after dealing with initial looks of dismissal as to why I woul...
Panhypopituitarism stories
Mum to congenital pan-hypit girl
Panhypopituitarism stories
I was Born with PHP. I wasn't properly diagnosed until I was 3. 
Panhypopituitarism stories
A few doctors theorized my pregnancy caused a macro adenoma. I began having weird symptoms before I was diagnosed i.e. My hair started falling out, my nails began to pit, I had galactorrhea even though I quit nursing a year before, no menses, and I s...

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Panhypopituitarism forum

PANHYPOPITUITARISM FORUM
Panhypopituitarism forum
Even though I am taking typically 35mg of Hydrocortisone, 20 at 8 am, 10 at 11 am and 5 at 2pm I suffer from sensitivity to glare and feel light headed and dizzy. it is hard to concentrate and generally feel crook. I am on Testesterone gel, 1 sachet...
Panhypopituitarism forum
My 22-year-old nephew was diagnosed with panhypopituitarism before he was one year old. He's taken Cortef, growth hormone, and Synthroid since then. The last few years he's had problems with social anxieties and depression. He's done a lot of jumping...

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