See how Paramyotonia congenita is diagnosed. Which specialists are essential to meet, what tests are needed and other useful information for the diagnosis of Paramyotonia congenita
This condition has been passed from my grandad, his 3 children, my brother, his 2 children and my 2 children and me. We have been to doctors, but none of them helped. We all cannot be too long in cold water, cold weather conditions and g...
I don't really know when my condition began. I only know that I've "always" had it (as does my mother and my sister). As a youngster in the 60s & 70s, I'd run and play on the playground (I grew up in NYC) until I simply couldn't walk and my best frie...